Thursday, January 28, 2016

And Then There's This


There was something I intentionally left out of yesterday's post about the book donation and the birthday of our twins. I didn't want to get too off-course or somber. But this has been pulling at me ever since.

As I shared, we did visit the original room where I birthed the twins. LDR16.

But I left out a picture I took as we were leaving. The room board. You know the one. The board where they write down your nurse's name, pain levels, approved meds, etc.

I had taken a picture of it when we left the hospital two years ago. Just one of the details of the room I wanted an image of. This was ours, the morning we left, on Jan 28, 2014.


Almost as a reflex, I snapped a picture again yesterday, before even really looking at the board. And as I lowered my cell phone to see the board, I felt sick -- out of breath -- as these words jumped out at me under Today's Plan:

"Mementos. Burial plans."

(blacked out section had a name in quotes, and not knowing if it related to the child/family in a specific way, 
I opted to black it out)

My heart sank as I immediately knew so much about the mother that had just left this room. Her baby, or babies, weren't going home with her either.

And our children shared this single room as their place in the world.

I wanted to find her. To validate everything she was feeling. To give her a look of understanding. To reassure her. To tell her, "You are not alone."

When you left this room numb and in shock. Glancing in the back seat looking for your child -- you were not alone.

When you got home and just stared at your own arms... the arms that held your child, and you imagine them still there. And you touch your belly, feeling so empty, wishing you could feel just one more kick -- you were not alone.

When you curl up in bed, silently screaming and crying from the depths of your soul, hoping that nobody would awaken to see you like that -- you are not alone.

When you blame yourself or your body, and go over a million what-ifs -- you are not alone.

When you fall apart without any warning.. collapsing in the shower, or needing to pull over on your way to work.. and you wonder if the tears will ever stop -- you are not alone.

When you pour yourself into the memorial/burial plans, thinking to yourself how this is the only event you'll ever get to plan for your child -- you are not alone.

When people awkwardly stumble their words around you, and you ignore nearly everyone that offers to "help," -- thinking to yourself that they can't, because they'll never know what this feels like -- you are not alone.

When you struggle to answer questions from strangers, such as, "How many children do you have?" -- you are not alone.

When you get upset at people for asking how you are, but just as upset when they act like you should be over it -- you are not alone.

When you see other children, especially those the same age as yours should be, and wonder if they would sound the same or look the same, or what their favorite cartoon would be -- you are not alone.

When, one day, you have your first genuine laugh since you lost them, and you feel a mixture of hope and guilt -- you are not alone.

I've been there. And some days, I still am.

We belong to the worst club. Mothers that didn't get to know their children. That never got to read to them, calm their fears, teach them about kindness -- to encourage them to dream. We never got to show our children what "home" should feel like.

Ours is a loss of everything that could have been.


But I know, on some level, what you wished for them. What you wanted to tell them. How you ache to hold them again.

You won't recognize me at the grocery store, or in line at the bank...
But you are not alone.


Wednesday, January 27, 2016

Two Years

The sun has set on your birthday once more.

The candles are lit next to your urns.

Two years ago we met you, and we lost you. Some days, it seems like a lifetime ago, or a fuzzy dream. Others, I relive every detail. Every feeling. Every sound. Every tear.

But your birthdays are always the latter. I can't help but to recall that day with such focus. Knowing you were coming. Not expecting to meet you alive. Holding you in my arms. Saying goodbye. And leaving without you the next morning. Every so often, I even go back and read your birth story -- because I don't want those details to ever fade from me.

At the same time, just like last year, we didn't want to sit home and drown in grief. We need this day to have purpose. So I arranged to, once again, deliver books to the maternity ward at IU Methodist in your memory. Last year, we took just 6 books, all from me and your dad. This year, several people joined our efforts and donated, allowing us to take 20 books.


Last night, as I prepared the books -- wrapping each with ribbon and adding a tag with your names -- it struck me.. "It's almost like I'm wrapping their birthday gifts."



And I'd give anything for that.

When we arrived today, I only had one thing I needed to do at the hospital. Since your little brother is experiencing this trip for the first time, I decided to take his copy of Goodnight Moon with us. As I explained to your dad, "I want to read it to him there... so it can feel like I'm reading to all my children." I didn't even care where it was. I just knew I had to do it somewhere in the hospital.

Immediately upon arrival, we were met by three women who graciously accepted the books, and talked about loss and grief with us. We shared a bit more of your story -- and our story. And proudly gave them the books to hand out to whomever they felt would benefit or enjoy them.

That gesture -- that gift -- was my comfort. Perhaps my only comfort. Knowing that up to 20 other children will have those moments of bonding and quiet with their parents that you were robbed of -- and that they'll have that, in part, because of how much we love you and how much you meant to the world.

During our meeting, I mentioned how much it meant to us last year when were able to visit the labor and delivery area where you were born. Immediately they responded, "We can absolutely do that again." They even asked if I knew the room number where I delivered.

I did. "LDR16"

"I think that one is available."

My heart felt heavy, but I wanted to go in that room more than anything. So we did.

And there was no place more fitting to read Goodnight Moon. I sat on the very couch where your dad had slept (until he crawled in next to me in the hospital bed to comfort me) that night. Not three feet from where you entered, and exited, this world.. I held your baby brother and read. Each page bringing me closer to tears.


Paxton closed the book as I gave him a big kiss. That kiss was for all of you.

And as your dad sat down beside me, reminiscing about that day, I looked around that room -- and every moment came flooding back. I gave myself a minute to cry. But soon, your brother was looking up at me and smiling, making sure I didn't lose myself in grief. But as we left that room, I still felt like I was leaving without you. Like some part of me will always feel like we should be taking you home.

All in all, it was a good day for us. It feels empty to say "Happy Birthday." Yes, it was the day you were born. But it was also the day you left. And the day you made me a mother, and your dad a father... And the day my heart was shattered, but grew tenfold, all at once.

So, I'll just say, I hope we made you proud. Gave our love for you justice. This day was just for the two of you.

We miss you.

Goodnight stars. Goodnight air. Goodnight noises, everywhere.

Goodnight Jasper. Goodnight Bodhi.

- Your mother


And if by chance, one of the parents that received a book has found their way here to read this.. be my substitute. My voice. Hold your child and read with them. It helps to make up for the all the chances I've missed. And without ever meeting you, you are helping to heal me, and giving purpose to the lives of my children <3

Tuesday, January 5, 2016

Goodnight Moon - Continuing to Remember

We're quickly approaching two years since the birth, and loss, of our twins.

As you may recall, last year, we donated a couple sets of board books to the maternity ward at IU Methodist (where they were born). The hospital was especially gracious. We met several members of the staff, were able to tour the ward and visit the room adjacent to where I delivered, and to share the story of our babies. They even interviewed us for their website.


We plan to do the same this year. Though we expect it to be much more low-key -- no interview or tour. Brad and I discussed how important it will be over the years to continue to honor and celebrate Bodhi and Jasper, especially doing so with our two youngest boys. We hope it will foster a chance for their brothers to get to know them and feel just as proud of them as we do.

Last year, several family and friends expressed interest in being involved, but since it was our first time trying such a thing we weren't organized or prepared for that. We now have several options for anyone that would like to honor Bodhi & Jasper in remembrance of their one day on earth.

1) You can donate physical copies of the board book Goodnight Moon -- either delivering to us in person, or buying and having it shipped via Amazon (email me on FB or at carollorton@alumni.purdue.edu for shipping address).

2) You can donate funds to us via Paypal (same email as above), that we will use to buy more books ourselves.

or

3) You can make a monetary donation directly to Methodist Health Foundation in their name.

As their mother, I just keep thinking about how awesome it would be to show up at the hospital on their birthday with 10 to 20+ books -- knowing that so many families/children will have something tangible in their daily lives because of Bodhi & Jasper. A chance for them to matter in the world that they didn't get to visit for very long.